On that note, we now have a plan for treatment, and it's not the route we were necessarily hoping for, but it's going to be what's best for Kalea, so we're happy. We will be putting drops in Kalea's good eye to blur it's vision for the next 6wks. That will force her turned eye to straighten out a bit and to work harder/better and hopefully increase it's function. As Dr.Cooper said "She's not going to like this because she doesn't see so great out of that turned eye." When we go to the doctor in March we'll decide if patching the eye is worth it- which probably would be, but knowing Kalea it's not going to happen. So we'll probably skip that step and go straight to the surgery step to straighten the eyes and give her some depth perception. Oh yeah, new development, she has very little, if any, depth perception- which may be why she's so fearless. She can't see 3D movies?! Now I know why she's never interested in them or any kind of 3D animation/claymation etc... It is kind of nice to know we'll never have to pay extra to go see 3D movies- I guess that's a bonus, right? For now anyways. The reason they want to get the weak eye stronger is so we only have to do the surgery once, some doctors will go straight to surgery without strengthening the eye and then these little kids have to have 5-6 surgeries before they're 6yrs old. Sad. So tomorrow we begin the drops which is going to make Kalea really unhappy with us. It's also going to make her seem a little blind. She's also going to be pretty irritable, and more whiny than usual. Lovely. We are looking forward to the little bit of annoyance in exchange for her being able to see more clearly out of both eyes. Hopefully she gets used to the drops fast and doesn't put up a crazy fight every day, but I'm not holding my breathe on that one, I might wear a helmet just in case!
***Somebody asked me the other day how I'm dealing with all of this, ha, maybe this is a good time to explain some more of the "tender mercies" that I've noticed recently that have been with me for a long time. First of all, I have the knowledge that this is not the worst possible thing to happen in our life ever. In fact, I've had 3.5yrs to prep for the surgery, we were hopeful that we wouldn't need it, but definitely not surprised that it's the best option. I also have more experience with eyeball dysfunction than I remembered, in fact all this eye stuff doesn't really bother me at all. In Kindergarten- yes Kindergarten- I rode the bus to school with a little girl who had what I now know to be a "wandering eye", she just told us all that one of her eyes had "jumping beans". Cute. She had glasses and a bunch of surgeries, I remember because there would be a stretch here and there, where she wasn't on the bus because she had to stay home, etc... And she almost always had funky sunglasses with her- just in case the light started to bug her eyes. She was always talking about doctors and nurses and her surgeries, but I think that helped make it less scary for her, and now I'm realizing what a blessing those memories are for me, no need to be scared they are highly capable people. I also had another friend in Kindergarten who got stabbed in the eye with something, and a tip of whatever it was broke off in his eye, so he had to have major surgery and he wore a patch with glasses for as long as I can remember. I'm talking well into Elementary school and then he moved away and when he came back to visit in Gr.6 he was finally just wearing glasses. Anywho, it seems that in almost every stage of school I've come in contact with someone who has an "eye thing" and I think all that has just made me more comfortable with the idea of my own kids possibly needing strange prism glasses, eye patches, glasses, surgeries, etc...Things have come a long way since I was in Kindergarten, the drops that Kalea will be on have only been used for the last 20yrs, haha that made me feel old. But it's amazing how certain medical fields have advanced in just my lifetime and we have a lot of faith that those advancements are really going to benefit Kalea now. We are so grateful to be working with such knowledgeable and fun people, and are looking forward to Kalea being able to enjoy more perfect vision really soon! Wish us luck, the next few weeks are going to be an adventure I'm sure.
4 comments:
Best of luck!!! I think you might be onto something with the idea of wearing a helmet ;)
What a blessing to have awesome medical staff to work with. You guys are in my prayers.
My niece had an eye surgery at a few months old and again at 6. She had to wear the eye patches as well, I know she got some cute pink ones similar to kids bandaids. She had to wear the patch for a few months for a few hours a day, but she has great vision and her eyes look great now.
Way to have a great attitude! GOOD LUCK!
I love the description of the doctor as that was how are favorite cardiologist was like. I wish you all the luck in the eye drops, who knows if she'll get used to you putting them in but you'll get to be a pro at pinning her down to get them in.
One of the biggest blessings you have is that the hospital is in the same city as you. It so great you can see the blessings when you have a trial.
I hope the eye drops are going good! Such a blessing to be taken care of like that. I know that Heavenly Father really does watch out for us and knows us better than we even understand. I always think how blessed we are to be put in doctors care who just happens to be a perfect fit for what we need. Hope everything continues to go perfectly!!
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